Thursday, July 31, 2008
Wednesday, July 30, 2008
I am not able to be with him this morning because we are having carpet RE-installed (long story I might blog about later). Supposedly the second day after the treatment is the worst. I have called to check on him and they feel like he was doing well. I'm hoping he will feel well enough to go to school today. Thank you so much for praying and I ask that you would continue to do so. Fletcher's next treatment will be next Wednesday.
The girls and I will be heading to Houston on Friday morning to spend a few days with Craig's Aunt Susie. The girls are really looking forward to this trip. I am as well but I'm always apprehensive to leave Fletcher for any amount of time. Craig will stay here so at least he'll have his daddy at night and his teachers and the medical staff will keep him busy during the day. I will keep you posted on the Burns family happenings!
Tuesday, July 29, 2008
He's not real happy to be stopping his walk so his sister can take pictures of him!
"Keep moving, mom!"
Sunday, July 27, 2008
On Tuesday Fletcher will start the Padmidronate infusion therapy. They will do blood work on Monday and if everything looks good especially his electrolytes they will be ready to start bright and early on Tuesday. Since this will be his first attempt with Padmidronate they will do blood work every two hours and if I understand it correctly the infusion will be over a twelve hour period once a week for three weeks. Dr. Brannon is being very cautious, this type of therapy is usually done in three days over a six hour period each day repeating it every three months until they have the desired results. Dr. Brannon is sure Fletcher is already experiencing bone pain and that is one of the side effects of Padmidronate they will give him tylenol before they start and as needed during the next few days. We're hoping that the Padmidronate will eventually decrease the bone pain and give him back some of the bone density he has lost. Would you all please be praying for Fletcher these next few day? It's hard to watch him be uncomfortable but it's for his best. Craig and I have a complete peace about going through with this therapy. I will keep you posted on how it's going.
Yesterday Maddie and I went to a baby shower for my niece, Amber. She is having baby number three and it's a girl. Her name will be Kate Olivia and she will have two great big brothers to help care for her. We're very excited for Amber and Matt and can't wait to meet that sweet baby!
Kim, Mom, Paula, Amber, me, Dawn, Maddie and Kylie
Amber and Dawn
Kylie and Kim
Me and Maddie
Tuesday, July 22, 2008
Friday night Kayleigh jumped in the pool with her clothes on!
Maddie and Kayleigh on Shamu. That's Marley's arm on the other side of Shamu!
Thursday, July 17, 2008
So, if you're on FB look me up. Maybe we can be friends! :)
Tomorrow we are going to pick up Kayleigh. We're all very excited to see her! She's been gone since the 29th of June! We'll travel all day tomorrow spend the day with her grandparents and head back to OKC on Sunday. We want to get back as soon as possible because we can hardly stand to be away from Fletcher! His grandparents and aunts are going to spend time with him so hopefully he won't notice that we're gone!
This video is pretty fun. Fletcher loves to kiss and one of his favorite nurses, Lisa can get him to kiss three times every time she asks. So, we thought we'd try to teach him to count by giving kisses. Just watch the results it's hilarious! Lisa is still the only one he'll give three kisses!
Monday, July 14, 2008
Maddie and Kylie
Well, look at Craig riding shotgun!
Craig and Jeff
Wendy and sweet Hannah
Betty and Randy
Thursday, July 10, 2008
Today Fletcher's speech therapist was cutting some paper and for some reason it just cracked him up! Since Fletcher has a trach he doesn't make noise. If you listen closely you can hear Fletcher laugh! It's so sweet to hear noise with the laugh and smile we love so much! He also got bored or frustrated and just started gripping about it! Oh yeah, and we probably shouldn't have given him a pair of scissors! Enjoy!
6) I am obsessed with the way Maddie's hair looks. It's crazy and I have been flat ironing it since she started preschool.
5) I'm pretty sure I'm addicted to refined sugar.
4) I hate to clean my bathroom!
3) I LOVE a mani/pedi!
2) Ironing, I enjoy it!
1) My current project? I'm entering all my recipes into the computer and I'm printing them and putting them into a binder.
I'm pretty sure some of these things are character flaws and I should work on them! :)
Amber - Kristin - Michelle -Christa -Kacie
Friday, July 4, 2008
We watched fireworks in the parking lot at TCC. This is the first year we brought Fletcher outside to watch. He seemed to enjoy it as long as his wheelchair was moving! So we took turns walking forward and backward with him facing the fireworks! Our friend Andrew's family brought him out of his unit to watch the fireworks also. It was good to get to hang out with them!
Me and my boy!
I became obsessed this morning looking through pictures trying to find all of our Fourth of July Old Navy t-shirt pictures. I can remember all of them but I couldn't find but a few. So I decided to go with Fletcher's first since that's when we became a family of five!
(no Kayleigh because she was in MS with her grandparents)
(no Kayleigh because she's in NYC)
I think Fletcher is going to end up doing a lot of things with his feet. You've seen him with his pillow, today he amazed me with his tenacity at getting this football to his hand! Check it out!
Maddie spent the night with her Mimi last night. Sometime today they're going to go see Wall-E. She's very excited! Maddie has been talking about this movie since we saw Kung Fu Panda at the beginning of June!
Today we're going to bring Fletcher home! It should be a quiet day. Craig's dad, BIL, two of his nieces and Kayleigh are all out of town. We'll cook some burgers and just have a low key day. I'll post more later with pictures and maybe even some video!
Tuesday, July 1, 2008
Maddie & EmiLee
Since Kayleigh is gone Maddie will be going to TCC with me everyday for three straight weeks. As you know I go in the mornings and take Fletcher to school and for our walk afterwards. Maddie loves to go to school with Fletcher but in all honesty he can't get much done because of all sissy's 'help'. Today when we walked in she found a chair with her name and picture on it. Fletcher's teacher knows that she'll be with me so they have set up the computer for her to play on and watch DVD's. Do you get how sweet that is? They so don't have to make provisions for her, but they have! I love his teachers and therapists they are amazing people and I'm so grateful for each one of them.
One of Fletcher's friends got him this t-shirt. It says, 'Dude, your girlfriend keeps checking me out!' I LOVE t-shirts that have funny sayings on them. Maddie had one when she was about three and it said, 'I make stuff up'. Too funny!
Apparently Fletcher can wipe his own nose. I didn't know this so I've been wiping it for him for sometime now. But now I'm on to him!:) The second video is Fletcher making what my girls call a 'monkey face'. I'm probably not being a good mom by one, videoing it in the first place and secondly, posting it on my blog for the world to see! Although he was sad it's the cutest thing ever! Sometimes he makes that face when he gets jealous. Today one of the RT's was talking to Maddie and I looked down at Fletcher and there it was the monkey face. He does get over it quickly!