Last week while at school with Fletcher I was able to video him with his teacher, Mrs. DeLisa. She has been working with him on his colors. He knows them pretty well. Most of you have only seen pictures of Fletcher and haven't seen him 'in action.' He's truly an amazing little guy. I'm so proud of him and the progress he's making. I hope you enjoy this video. Please feel free to comment to let me know what you think.
Wednesday, May 28, 2008
Mark Harmon signed the back of Maddie's shirt and she still loves and wears it!
Also the Farmer's Market at TCC is opened they're there every Thursday 3:30p -7:00p and on Saturdays 8:00a-12:00p.
Sunday, May 25, 2008
the toes and flip flops
the party favors!
The second party was the 'family party' which is always fun. I love being with my brothers, sisters, nieces, nephews, in-laws and my mom. Laughter abounds when we're all together. Everyone came to our house at 4pm for cake and ice cream and the opening of the fabulous gifts! Okay so one gift not so fabulous in my opinion, but the bomb dot com in Maddie's world! The megaphone from Grandma Jill. Mom, seriously? What on earth did I do to deserve that? It's almost as bad as the book of 365 days worth of Knock, Knock jokes from the other grandparents! :) The megaphone has the ability to change the sound of your voice, very loudly and officially became an outside toy this evening!
nice...the gifts...thanks family!
Kim, why are you laughing so hard?
In all seriousness we'd like to thank everyone who came and celebrated our girl with us! It was a lot of fun and so great to see everyone!
Tomorrow is Memorial Day and we will bring Fletcher home for the afternoon. We're really looking forward to having him here. We'll have Craig's family over and grill some burgers and eat some great food. But, we'll also be thankful for the men and women who have and are serving our country so we can be safe. God bless you all!
Friday, May 23, 2008
May 23, 2003
May 23, 2008
Wednesday, May 21, 2008
Tuesday, May 20, 2008
This morning Maddie woke up with a temp of 100.9 and it's slowly gotten worse the highest being 103.1. It's now down to 101.2. Would you all please pray for her? I don't want her to miss her last week of kindergarten. And her birthday is Friday. I really don't want her to be sick on her birthday!!! She and I have been working so hard on her party for the last two weeks. Saturday she is going to have a mani/pedi party at our favorite nail salon. She has invited 5 of her friends and she's very excited! For the party favors we purchased silver flip flops and hot glued pink and silver hearts on them. She picked out two small bottles of nail polish for each of her guest. So, now I'm just trying to put it all together. Presentation is everything, you know! That's all for now I'll post after the party.
...the party favors!
Monday, May 19, 2008
Isn't she precious?
Mommy's little ballerina
Friday, May 16, 2008
Monday, May 12, 2008
Oh well, maybe next time...
The Burns grandchildren
Today, however, has been a tough day emotionally for me. It usually is the day after having Fletcher at home. Having him here is bittersweet. The sweet part is having him with us and the sense of normalcy that we feel. The bitter part comes when we have to take him back. He's always so happy to be back at TCC and that hurts my heart because TCC is not his home. I also face the reality that what we are doing is not normal, nothing about it seems right. Craig and I were exhausted yesterday, not because physically it's hard to have Fletcher home, emotionally it wears us out. When we sit and think about it, we realize we are traveling in a mini van with a critically ill, ventilator dependent baby. His life is literally in our hands. We, of course have been trained to take care of him and we do a great job of it. But when I think about it, it's overwhelming. It's our normal and I wish it wasn't. I always have a hard time taking Fletcher's crib down and taking the car seat out of the car. I'm not sure exactly what that does for me. I guess the biggest part of it is denial and trying to hold on to the normal. Even though having a crib in your living room isn't normal it was for us when he lived at home. Like the crib and the car seat I feel empty inside. I hate that he doesn't live at home. That he can't walk or talk. One day last week I took Maddie to see Fletcher and on the way home she said, 'I wish I had a brother that wasn't on oxygen.' My heart broke when she said that. I didn't know how to respond. I tried to bring out the positive things about Fletcher. I know life will go on and hopefully tomorrow will be a better day. But, if you think about would you pray for me?
Friday, May 9, 2008
Sunday, May 4, 2008
Fletcher playing with Aaron's hat
I'm sure you've all been wondering about baby Lucille. Well, Lucille had a horrible accident the first day Kayleigh took her to school. One of Kayleigh's friends was pretending to throw Lucille and he crushed her!!! Thankfully Kayleigh's teacher let her make another baby. Softball is in full swing right now. Kayleigh is playing several positions but prefers left field. Hmmm...I wonder if that has anything to do with that blonde hair! So far she has played 3rd base, short stop and catcher. She just feels more comfortable in the out field. Last night Kayleigh's BFF Vanessa spent the night and they made t-shirts for their small group at church. We always have so much fun with Kayleigh and Vanessa. They are so much alike and Vanessa is a true friend to Kayleigh. After dinner we made s'mores out on the patio in our chimenea. It was great fun.
My softball player...ain't she cute!
On our way to church
Maddie had her last Girl Scout meeting for the year Thursday night. She was really sad that she has to wait until school starts in fall to go back. Me, I'm thankful for the break! At the last meeting they made 'edible fire'. It was made from all kinds of snack foods and as they built the fire the leader explained how to make a camp fire. For example they unrolled a fruit roll-up and that was the clearing, they used mini marshmallow for the rocks, etc. Pretty neat. One of Maddie's little Daisy friends said, "I can't believe we're going to make edible fire!" and I asked her if she knew what edible meant and she said, "No" so I told her she could eat it and they all squealed with delight! It was hilarious! Saturday morning Maddie and I were the first ones awake so we decided to make breakfast. Maddie was a very good helper she cracked the eggs and put the biscuits on the cookie sheet. All of us haven't had breakfast together in a very long time. We really enjoyed our morning.
Thursday TCC opened all the units! Maddie is now able to go and see her brother! Yay! Maddie wanted to see Fletcher the second she got out of school. He was as happy to see her as she was to see him. Maddie couldn't wait to get into his bed and she really wanted to read to him. It was so sweet. Friday I went to school with Fletcher for the first time in months. His schedule was changed around so much I don't even know what time he went to class, but since RSV is officially over things are getting back to normal. Anyhoo, I went to class with him and he picked the first song, 'Twinkle, twinkle little star". The only hand motion he does is the 'wonder what you are' and he taps his index finger on the side of his head. It is so very cute! Well, get a load of this...Friday for the very first time ever he moved his fingers at the time of the twinkle, twinkle part! Oh my goodness, I started crying when I realized what he was doing! I went straight out into the hall and called Craig. It is amazing how that little finger movement is such a blessing to us. It's not that he can't move his fingers, because he can. It's that he did it deliberately, at the right time and more than once! I have thought about all weekend and sung that song to him twenty times and he does it every time (if he wants too)! Tonight we all went up and saw Fletcher, he loved seeing his sisters.
My sweet kiddos