Craig bought all three of his girls candy necklaces!
Our Valentine cake
There's nothing Fletcher likes better right now, than the stacking balls he got for Christmas. They are pretty cool and you can do so much with them. We always start by stacking them up and Fletcher takes them apart one by one. Then we usually help him snap them in to a ball. Well, Fletcher Burns is now able to line them up and snap them together by himself! It's such a blessing to watch him work, he gets frustrated easily but when he gets them together he just smiles! I've been trying to get it on video for about a week and on Sunday one of Fletcher's favorite RT's was able to capture it on video! We also put his bed in a sitting position and hooked up his DVD player he seems to really like Sesame Street. Hope you all enjoy these little videos.
This is how it starts...
A sweet moment...
A few weeks ago Maddie's school had a dress up as your favorite storybook character. So she wore the Little Red Riding Hood costume Kayleigh wore when she was about the same age. I've been looking for the pictures I took of Kayleigh when she wore it but I can't find them! :( Maddie also received an award for knowing all of her vowel sounds. Please allow me to brag on Maddie for just a moment. A few weeks ago I was volunteering in Maddie's classroom. During reading time Mrs. Johnson spent a little extra time with Maddie. Later Mrs. Johnson told me that by the end of 1st grade the children should be on level 16 and currently Maddie is at a level 30! WOW! Now Maddie, she's a girl that loves to read! We're hoping she'll continue on that path! Way to go, sis!
Maddie Riding Hood
Fletcher is doing really well! He's been working on a computer with his speech therapist, Heather quite a bit lately. He really seems to like it. There are still a few challenges they're trying to overcome equipment wise. Fletcher's little arms are so short maneuvering the computer has been difficult. We're trying to get the screen close enough that he can touch it. We've tried him in his wheelchair and it just doesn't quite work. Heather has been sitting him in her lap but that still isn't giving him the independence he needs. But, if I know Heather, she's going to find a way to accommodate my sweet boy!
Fletcher will be having surgery on Wednesday. The tubing on his central line has broken in two places. This line has only been in place since November 26th! That line should have lasted at least a year. The tubing, which is on the outside of his body can't be repaired so he has to have it surgically removed and replaced! We're hoping that they can put a port in him instead of central line. But we've been down this road before and have been told he has too much scar tissue. It would be such a blessing if he could have a port. A port would be under his skin, you wouldn't be able to see it. I would love for him to have one less tube hanging off of his little body. Would you guys please pray for him on Wednesday? Thanks!