Today Fletcher had an appointment with his cardiologist, Dr. Razook. He had an echocardiogram and an EKG. And Fletcher's heart is doing great! Praise the Lord! For some of my new blogging friends, Fletcher has IHSS (Idiopathic Hypertrophic Subaortic Stenosis) and on November 10, 2005 when he was just ten months old he had open heart surgery to repair the stenosis. The surgery was a success and literally saved his life. There is always a chance that the stenosis could come back so he has regular echo's and EKG's. Fletcher was a toot today at his appointment and Dr. Razook asked him, 'do you treat all doctors like this?' and I said, 'yep, pretty much!' Anyway, when we go to the doctor an EMT takes us in a handicap accessible van, drops Fletcher, an RT and me off at the appointment and when we call him he comes back for us. Today we had a bit of a wait after our appointment so we waited in the lobby. As we were waiting two little girls about 8 and 10 years old noticed Fletcher. So over they came and just stood there and stared at him. This is, of course, very annoying and heart wrenching all at the same time. Soon their mother came over and said, 'See, it's a baby. Don't worry I'm sure it's mother is used to people staring.' Unfortunately I said nothing hoping they would just go away. But they didn't. I wish I would have said, 'I will NEVER get used to people staring at my sweet son!' One of the sad things about this few minutes in our day is that Fletcher was extremely mad and it didn't help the staring and the asking of a million questions that we're being thrown in our faces. I'm guessing that when people see Fletcher they are shocked, they don't have any idea of 'what happened to him' they are afraid maybe (of a two and a half year old?) I don't know. I don't know how I want them to act or ask or look. Sometimes I just want to scream and say he's a baby please quit staring at him, he's a person just like you with feelings. Stop staring! I DO want people to look beyond his skin, beyond the tubing and wires and ventilator and see him. He's amazing, he's smart, he's funny! That few minutes made me forget the good report we had just gotten from the doctor. That few minutes dashed a lot of my hopes and dreams of Fletcher having a normal life. Sometimes I imagine that Fletcher will be able to breathe on his own and that he'll come home to live with us, that he'll go to the same school with Maddie and make friends and that things will be normal for all of us. That few minutes crushed that dream today. It made me ask a lot of questions that I don't and probably won't have answers until the time is right. All evening I've been telling myself, to be in today and trust Fletcher to Jesus. Only the Lord knows the plans He has for Fletcher. I have to hang on to that and know that the Lord loves Fletcher even more than I do.
One more thing before I close, Fletcher WILL have eye surgery on Monday, September 17th at 7:45 am. We'd greatly appreciate your prayers. Fletcher had this same eye surgery on October 18, 2006 and that surgery wasn't successful please pray that it will be this time. Thanks so much!