Tough days...

The last two days have been tough for our sweet Fletcher. He has a very bad yeast infection around his trach and g-tube, on his tummy, under his left armpit and in his groin! UGH! Our concern is that the infection will get to his central line and that would be bad news! But, so far they have been able to keep it at bay. Right now they are treating it with Difulcan and a topical cream, they'll try this for 48 hours and if it doesn't clear up they will give him an IV anti-fungal. He's just been cranky and I don't blame him! Last night our church had Holy Halloween, the plan was to load up Fletcher and take him to the church. Well, that plan fell through when we went to TCC to get him ready and he just wasn't happy and nothing we said or did changed his attitude. Then as soon as we put him in his wheelchair he desated. That's when I said forget about it, he's not going anywhere. The girls were already at the church so Craig stayed with Bubba and I went to meet the girls. I was so sad not to have Fletcher with me. I'm so tired of not having a normal family where we can all go places together. And I hate that that's our normal. People don't ask where Fletcher is, because it's normal for him not to be with us. I know, having this kind of attitude doesn't help and you all know I don't dwell on this constantly but some days are just harder than others. And yesterday was one of those days! The girls had a great time. Maddie played all the games and bounced the night away in an inflatable! Kayleigh helped her youth group sell nachos and throw people in 'jail'! After Holy Halloween, Kayleigh had a blast trick or treating with her cousin. Well, that's all for now, please keep Fletcher in your prayers that this yeast infection would go away and that he'll stay healthy this winter.




PS I have started working on my 'Fletcher series', but I'm kind of struggling with putting this experience in words. So, it might take a little longer than I planned...