Update

Fletcher is still in the PICU at Baptist. Right now everything that is going on with him is so complex and hard to understand and to explain. I will try to do my best to explain what is happening. About a month ago we found out that Fletcher has Hypophosphatemia Rickets, basically he has the bones of a 95 year old woman. He is very fragile and in critical condition. Fletcher is experiencing bone pain and he is very agitated. At this time we are trying to manage his pain and keep him comfortable without completely sedating him. He is having moments of smiling and giving us kisses. But his times of pain and agitation outweigh those good moments. Yesterday they took x-rays of Fletcher's extremities. They showed us the films and what we saw was unbelievable. His little bones are bent and bowed and barely have calcium in them. His right arm had several old fractures, meaning his little arm as been broken several times and we didn't even know it! There are no new fractures on his arms and legs, they believe he might have some compression fractures on his spine. They will take more x-rays tomorrow of his spine and pelvic area. The problems with his electrolytes (calcium, phosphorus, sodium, potassium, etc.) are not fixable. We would appreciate your prayers as we travel this road. We firmly believe that only God knows the number of Fletcher's days and nothing we do will change His sovereignty.