These feet...

I walked into the Center yesterday and Fletcher was sleeping with his rag over his face and the first thing I noticed were his feet. His bare feet, he always has socks on so I was taken by these precious little God given treasures! The second picture is of me holding his tiny feet when his was just five months old. Too precious! Thursday we had a Patient Care Conference (PCC) for Fletcher, PCC's are scheduled every ninety days. They are an informative meeting with the pediatrician, nurse practitioner, head of nursing, nutritionist, PT, OT, education, speech therapy, music therapy, and our social worker. Everyone goes around the table and gives us an assessment of the past ninety days. Fletcher is doing well, he hasn't made very many gains but he was sick for awhile and the Center seems to be short-handed right now so he's not really (in my opinion) truly getting the benefit of all his therapies. Our PT filled us in on Fletcher and said he had made no gains this assessment period and also that they would no longer be working with him in the gait trainer (basically a walker). I can not remember her exact words, but what Craig and I heard was they would no longer be working on helping Fletcher to walk. It took a moment for it to soak in and I finally said 'wait a minute, are you telling us that Fletcher won't walk?' And she said something and then I said,' EVER?' To which she said she didn't know the answer to that question. I will say I felt like I had the wind knocked out of me. I began to cry and I tried desperately to keep my emotions under control. You know, Craig and I have a lot of questions that we're sometimes too afraid to ask like, will Fletcher walk, will he talk, will he breathe on his own? Thursday was the first time we ever heard those words spoken out loud. It was devastating to us. Anyway, this lead to a lot of drama and miscommunication. I believe we have worked it all out and that we're on the same page. His PT told me a lot of different things have to happen before we can even begin to work on walking. She told me it was her goal to maximize Fletcher's potential. She was not the one who started him in the gait trainer and she believes we put the cart before the horse since so much more has to happen before he's ready to walk. Every morning Maddie and I have prayer time together and we ALWAYS pray that the Lord would strengthen Fletcher's neck, back, legs and lungs so he can do what he was created to do. Would you all mind praying that with us?