Today Fletcher had an appointment with his endocrinologist, Dr. Domek. Fletcher is on an extremely large DAILY dose of steroids and they are going to start weaning him off of them. They did try weaning him last year at this time and they weren't successful, maybe just not aggressive enough so, here we go again. Would you all mind praying that we would have success in getting him to a reasonable dosage? Dr. Domek is concerned about the long term effects of long term steroid use, one that he mentioned a lot today was osteoporosis. Anyway, it was a good appointment and since we were at Baptist we were able to go up to the PICU and see our friends there. How fun! Fletcher even warmed up and showed all of his latest tricks. He's very good at his body parts these days! Ask him where his head, ears, nose, tongue, mouth, hands and feet are and he'll show you! What a smart boy!
Last month Fletcher had an appointment with a neuro opthamologist, Dr. Siatkowski. That appointment didn't go like I hoped it would. As you all know Fletcher's right eye hasn't opened completely since birth and we have literally spent his entire life trying to get it fixed. As you may recall he had surgery on his eye on October 18, 2006 with Dr. Hildebrand. And as you can see the surgery was not a success. He basically only got a scar out of the deal! UGH! Well, when we saw Dr. Siatkowski he said the surgery needs to be done again and he referred us back to Dr. Hildebrand! So, on Wednesday we have an appointment with him. Don't get me wrong, Dr. Hildebrand is a good doctor, but I have this feeling that there will be some 'reason' why the surgery didn't work other than the doctor didn't do it correctly! I'm really not looking forward to this appointment. Please join us in praying for resolution to this eye drama!