Friday, September 18, 2009

Good times...

In late 2007 when we found out about Fletcher's rickets we had to alter his physical therapy...a lot. They eliminated a few things, adjusted a few things but one thing that was very important and very valuable was standing in the stander. His PT eliminated standing because it was just too dangerous with Fletcher's fragile bones. Well, for the last two Thursdays Fletcher has tolerated standing in the stander because this boy is growing, he's stronger and it's just time for him to start working on bearing weight! I can't begin to tell you how exciting this is for me. Fletcher looked so BIG and TALL in that stander yesterday and I was so proud of the forty minutes of his hard work! We did have to work overtime trying to keep him busy and distracted. Fletcher is also rolling over now and bearing weight on his arms which is an amazing accomplishment for our little guy! I can't say it enough...the Lord is working a miracle in Fletcher! It's such a privilege watching the Lord at work in Fletcher's body. Almost two years ago we were working a plan of letting him go, managing his pain, preparing ourselves for the worst. This boy was 'wasting away' his bones were, for lack of a better word empty! They told us he had the bones of a 95 year old woman. Look at him now! Nothing is going to stop him. I believe one day Fletcher Samuel Burns is going to walk! I'm so grateful to feel hopeful!

He did it!! And with a smile on his face!

Fletcher and a very proud Mommy


Fletcher's last Pamidronate infusion went well. We did have one problem. Fletcher had to have a peripheral line since we were having problems with the port. Well, on the second day of the treatment they found that his IV was in an artery instead of a vein! Not good! But it all turned out fine they changed it out and put it in his other foot and finished the treatment. Through the process we found that the port is clean. No MRSA and it's usable. Praise the Lord. They are keeping it covered and using a special bandage that should help the skin grow back over the port. So, we'll see what happens and I'll keep you posted.

We are bringing Fletcher home today! We have a few things planned. We're going to the Buddy Walk at the Bricktown Ball Park then home for football and a yummy birthday dinner for Craig! I'll post pictures soon. Have a great weekend!

4 comments:

KaylaB said...

we believe, too. missing you all! kisses and lotion from kayla and em.

Anonymous said...

It's been a long road but WOW! Just to see your boy, Fletcher, standing! Yeah God and yeah for those who work so diligently with your lil guy and yeah for you and yours! You bless me. love, KeriJo

The Brineys said...

OH MY GOSH!!!!!
Look at him GO!!! Praise God.
I have a huge smile on my face!!
He is getting SO strong! Our Father is GOOD!
It looked like he was having a great time standing up. I bet he loves to feel that freedom!

We praise you God!!!

randy said...

Way to go Fletcher!! He is looking good every day. Good care, good friends and a Wonderful Family!! The Lord God Almighty IS Good. Thank you Jesus. xoxoxoxox.