Can't believe it's been a month since my last post...

So let's see we've had Father's Day, Summer Fun Day at TCC, Fourth of July and we've given Kayleigh's room a little make over. There's so much more that I can't even remember so pictures are going to have to do this time! The pictures are out of order because of blogger. I do not know why it won't let me move the pictures around, oh well. Please know we are all doing very well. Just enjoying summer and all that goes with it. We will leave in the morning to take Kayleigh to her grandparents in Mississippi for her annual summer time trip. Craig, Maddie and myself will return on Monday but Kayleigh will stay for three or four weeks.

Kayleigh's new room

Kayleigh and me painting

July 4th ~ Craig and Fletcher

July 4th ~ our annual Old Navy flag shirts picture at home

July 4th ~ Maddie and Fletcher at home

July 4th ~ Kayleigh and Fletcher (he's really into licking right now)

Fletcher and me that's a power chair he's using!

Kayleigh and Craig ~ going away party for some of our dear friends the Breedlove's

Father's Day ~ Megan, Rodney, (Craig's brother in law) Devon and EmiLee

Father's Day ~ Kristi, (Craig's sister) David (Craig's dad) and Craig

Father's Day ~ Kayleigh and Fletcher at TCC in his bed

Father's Day ~ Kayleigh, Maddie and Fletcher at TCC in his bed

Father's Day ~ Fletcher and me, like I said he's really into licking these days

Father's Day ~ Craig, David and Fletcher three generations

Father's Day ~ Maddie, Craig, Kayleigh and Fletcher

Maddie summer fun day at TCC

Fletcher and Dawn (my sister) and a group of her co-workers volunteering at TCC

Fletcher on our way to meet his new cardiologist

Happy Father's Day...

Happy Father's Day Craig! Thanks so much for being such a wonderful husband, daddy and friend! You're the B-E-S-T!

Yesterday we brought Fletcher home for the afternoon so we could celebrate Father's Day under one roof! We had a terrific day! Craig's parents and his sister and nieces came over for dinner. Craig's mom, Trudie made a fabulous lasagna and I made a chocolate trifle for dessert! Yum-o! Fletcher was very playful and we all loved playing with him. He loves his ring stacker and he also loves to play ball. His Aunt Kristi made up a new game to play with him. You'll have to watch the video to get the full effect of the game! Too, too funny! We didn't see a whole lot of the girls. Kayleigh and her cousin Devon stayed in her room and chatted. And Maddie and cousin EmiLee stayed in her room and played and played! None of them coming out until it was time to eat!



Aunt Kristi and Fletcher

Every holiday I try to get a picture of all of the kids together or all five of us together. Well, for Father's Day and I wanted a picture of Craig with all three of the kids. Rarely do we get one with Fletcher being nice and yesterday was no exception! If you look at my Mother's Day picture same thing, Fletcher not being nice! :) He's such a toot sometimes! I guess I take way too many pictures in his opinion because every time I get my camera out he just starts shaking his head 'no'!

Father's Day 2008

The girls ended up spending the night with their cousins and Craig and I enjoyed some alone time together. It was nice to be home with my sweet husband. We rented the movie August Rush. What an awesome movie! If you haven't seen it I highly recommend it!

Happy Father's Day!

Yesterday was a day devoted to dear ol' dad! We started the day by picking up Fletcher at TCC and taking him to church with us. He was a bit grumpy and we weren't able to sit in the service with him due to the beeping and crying! Craig and I were shocked, normally we can't hear him cry! Craig and I had to alternate holding him as he slept in our arms. Craig's parents and his nieces joined us for church and for lunch afterward. Great food and family time how fun is that? Kayleigh made Craig a lemon cake (his favorite) and decorated it with cream cheese frosting (also his favorite!) and added lemon drops to top it off! It was yummy and daddy really liked it!After everyone left Fletcher took about a three hour nap! And the rest of us napped as well and we just hung out for the rest of the day. We took Fletcher back at about 7:30. Thanks for your prayers, it ended up being a terrific day with our family!

Today Fletcher had an appointment with his endocrinologist, Dr. Domek. Fletcher is on an extremely large DAILY dose of steroids and they are going to start weaning him off of them. They did try weaning him last year at this time and they weren't successful, maybe just not aggressive enough so, here we go again. Would you all mind praying that we would have success in getting him to a reasonable dosage? Dr. Domek is concerned about the long term effects of long term steroid use, one that he mentioned a lot today was osteoporosis. Anyway, it was a good appointment and since we were at Baptist we were able to go up to the PICU and see our friends there. How fun! Fletcher even warmed up and showed all of his latest tricks. He's very good at his body parts these days! Ask him where his head, ears, nose, tongue, mouth, hands and feet are and he'll show you! What a smart boy!

Last month Fletcher had an appointment with a neuro opthamologist, Dr. Siatkowski. That appointment didn't go like I hoped it would. As you all know Fletcher's right eye hasn't opened completely since birth and we have literally spent his entire life trying to get it fixed. As you may recall he had surgery on his eye on October 18, 2006 with Dr. Hildebrand. And as you can see the surgery was not a success. He basically only got a scar out of the deal! UGH! Well, when we saw Dr. Siatkowski he said the surgery needs to be done again and he referred us back to Dr. Hildebrand! So, on Wednesday we have an appointment with him. Don't get me wrong, Dr. Hildebrand is a good doctor, but I have this feeling that there will be some 'reason' why the surgery didn't work other than the doctor didn't do it correctly! I'm really not looking forward to this appointment. Please join us in praying for resolution to this eye drama!