Ultrasound results...

Fletcher and I went to Baptist Hospital this morning for his renal ultrasound. Things went well and we were able to go up to the PICU and visit our friends there. It's always great to visit and NOT have stay there! :) I got a call from TCC this afternoon and the US showed no blockages or stones of any kind. It did show that his kidneys are enlarged for his size and age. What this means I'm not sure. They are making an appointment for Fletcher with the nephrologist over at Children's Hospital, hopefully he can give some direction on what to do with our little guy. That's all I know for now. Thanks for your prayers!

waiting for our friend Mr. Joel to pick us up today...

Update...

Okay here's the deal...Fletcher will have a renal ultrasound at Baptist Hospital on Wednesday morning. One thing they will be looking for is kidney stones. His lab work came back normal today except the creatitine was still elevated. Fletcher has been in a good mood for the most part. His heart rate was elevated a little this evening and he was fussy so they gave him some tylenol. I forgot to mention in my last post that Fletcher's port will not draw blood or flush. This is bad news because it will have to be surgically removed and replaced. The surgery is scheduled for next Thursday. Boy when it rains it pours over here at Casa Burns! I'll keep you posted after the ultrasound. Thank you so much for keeping the boy in your prayers!

Prayer Request...

This morning Fletcher had an episode where his heart rate dropped into the 30's. They did blood work and found that his phosphorus and potassium are too high. They did another lab called a BMP (Basic Metabolic Panel) to check his protein, calcium, and creatinine I do not know the results of this test. They will do another BMP in the morning. They put a foley catheter in him this evening and will monitor his urine for 24 hours. They also want him to have a renal ultrasound as soon as possible. They will call in the morning an try to get the ultrasound scheduled. So, all of this to say please pray for our little guy and that we'll be able to get that ultrasound very soon! The last time I checked on him (about 10:30p) he was sleeping. Fletcher was in a surprisingly good mood when Craig and I both saw him today. He didn't seem to be experiencing any pain and his heart rate and oxygen saturation were normal. When I arrived this afternoon the crash cart was next to his bed and he was hooked up to a heart monitor. Let me tell you, I'm thankful for the crash cart but it still makes my heart worry every time I see it! Well, that's it for now. I'll keep you posted and as always thank you for praying for our sweet boy!

This picture was taken last Thursday. I just wanted to leave you with a cute picture of a cute boy!

To Chew or Not to Chew...

February 16th? I can't believe it's been that long since I last updated. Sorry, friends! Things are busy around Casa Burns and we're just waiting for spring break so we can take a breath and relax.

Let's start at the top...last week Craig and I celebrated our 8th year of marriage. I was surprised that afternoon with a delivery of 8 gorgeous red roses. Craig also took me to dinner at Outback and we enjoyed a wonderful meal and great conversation as we reminisced over the last eight years. Boy have we had an interesting go at it!


Kayleigh recently enrolled in 10th grade! WOW! My baby's growing up! She's also very excited and ready for spring break. Kayleigh's grandparents are planning to come to OKC, spend the night and then head back to Mississippi with Kayleigh in tow. She is so excited to see her grandparents, aunt, uncle and all her childhood friends. It should be a great time for all involved.



Maddie is staying busy as well. She continues to love ballet and Girl Scouts and just finished selling 266 boxes of Girl Scout cookies! Man am I glad that's over! Maddie is also doing very well in school. We had her parent teacher conference last week and she's already ready for 2nd grade! And...by the end of 2nd grade there are 300 sight words she'll have to know and as of last week she knows 297 of them! Can you believe it? We are so proud of our little reader. It was such an encouraging conference. Mrs. Johnson said that Maddie isn't bored and that she's an appropriate 1st grader. That's great news I would hate for her to be bored at school she could probably stir up all kinds of trouble with too much time on her hands!



Fletcher is doing great and seems to be feeling well. Now that doesn't he isn't bored! Because that little toot is causing some problems for himself. Fletcher has a new tendency to chew on things when someone isn't paying attention to him. This seems to happen mostly on second shift (3p-11p) He's been chewing on his tubing and vent circuits. You see, if he chews just long enough and in the right spot his vent will alarm and someone will come to the rescue ie pay attention to him. Do you get where I'm going with this? He's intentionally making that alarm sound! The nurse practitioner had to have a serious talk with me last week informing me that Fletcher is a danger to himself! Think about it, if they don't get to him in time just about anything could happen. So, they're all working together to come up with some practical solutions such as sitting him up in his wheelchair, therapy schedule changes and a scheduled nap time each day. It seems to be working. Although now Fletcher is chewing on his sleeves and his loveys (burp cloths). So, we've started dressing him in short sleeves. I don't know what we'll do about the lovey. He sleeps with them and I don't know if emotionally I'm ready for him to give up the lovey! I took pictures of one of his loveys and a pajama top.

Well, I'm going to close for now we need to get to church. I just wanted to do a quick update so you all would know we hadn't fallen off the planet! We're all doing well just super busy! Have a great week!

Much love...

Well, we had a wonderful Valentine's Day with Fletcher here at home with us. I made beef enchiladas and salsa. I also made a strawberry cake with cream cheese frosting! Yum-o! We just hung out and played with Fletcher most of the day. Craig's parents came over and joined us for dinner. It was a great day! Fletcher sat up in his high chair for quite a bit. At the end of the day we were practicing sitting up. Fletcher sat up unassisted for about 20 seconds! It was so amazing! We were able to catch it on video!!!

Three of my favorite Valentines!

Listening to sissy's ipod

Craig bought all three of his girls candy necklaces!

Our Valentine cake

Sitting up!!

That ain't snow...

We're having some spring weather here in OKC during February! We've had several tornadoes today. And it's not over yet! The girls were on lock down and are now home safe and sound. They also put TCC on lock down and Fletcher is safe as well, bored but safe!

Would you look at him...

There's nothing Fletcher likes better right now, than the stacking balls he got for Christmas. They are pretty cool and you can do so much with them. We always start by stacking them up and Fletcher takes them apart one by one. Then we usually help him snap them in to a ball. Well, Fletcher Burns is now able to line them up and snap them together by himself! It's such a blessing to watch him work, he gets frustrated easily but when he gets them together he just smiles! I've been trying to get it on video for about a week and on Sunday one of Fletcher's favorite RT's was able to capture it on video! We also put his bed in a sitting position and hooked up his DVD player he seems to really like Sesame Street. Hope you all enjoy these little videos.

This is how it starts...

Still working...

A sweet moment...