Thursday, June 28, 2007
Tuesday, June 26, 2007
Friday, June 22, 2007
Fletcher and Mrs. Sybil his favorite teacher's assistant.
Well, Fletcher had his appointment with Dr. Hildebrand on Wednesday. It went okay I guess. Fletcher will be having surgery on his eye again. We don't have a date set yet. Fletcher is having a CT scan next Thursday and Dr. Hildebrand wants to wait for the results of the CT scan before he makes a decision on what to do surgery wise. I'll keep you posted.
Fletcher sportin' new glasses!
Monday, June 18, 2007
Today Fletcher had an appointment with his endocrinologist, Dr. Domek. Fletcher is on an extremely large DAILY dose of steroids and they are going to start weaning him off of them. They did try weaning him last year at this time and they weren't successful, maybe just not aggressive enough so, here we go again. Would you all mind praying that we would have success in getting him to a reasonable dosage? Dr. Domek is concerned about the long term effects of long term steroid use, one that he mentioned a lot today was osteoporosis. Anyway, it was a good appointment and since we were at Baptist we were able to go up to the PICU and see our friends there. How fun! Fletcher even warmed up and showed all of his latest tricks. He's very good at his body parts these days! Ask him where his head, ears, nose, tongue, mouth, hands and feet are and he'll show you! What a smart boy!
Last month Fletcher had an appointment with a neuro opthamologist, Dr. Siatkowski. That appointment didn't go like I hoped it would. As you all know Fletcher's right eye hasn't opened completely since birth and we have literally spent his entire life trying to get it fixed. As you may recall he had surgery on his eye on October 18, 2006 with Dr. Hildebrand. And as you can see the surgery was not a success. He basically only got a scar out of the deal! UGH! Well, when we saw Dr. Siatkowski he said the surgery needs to be done again and he referred us back to Dr. Hildebrand! So, on Wednesday we have an appointment with him. Don't get me wrong, Dr. Hildebrand is a good doctor, but I have this feeling that there will be some 'reason' why the surgery didn't work other than the doctor didn't do it correctly! I'm really not looking forward to this appointment. Please join us in praying for resolution to this eye drama!
Thursday, June 7, 2007
On Saturday, June 9th TCC and Mark Harmon (CBS TV series, NCIS) is hosting the 7th annual celebrity baseball game at the Redhawks. It's a great fundraiser for The Center and sounds like a lot of fun. We are planning on being there. We'd love to have all of our friends and family join us! It starts at 3p you can buy your tickets at the Redhawks box office (I think they're about 5 or 6 bucks) the ticket you purchase will also be good for the Redhawks game that evening.
Another exciting thing that's happening at TCC is the Farmer's Market! It is open on Thursdays 3:30p-7p and on Saturdays 8a-12p. It also benefits the children at TCC. Last year I went every Saturday morning and I bought the best tomatoes and fresh fruit! We were really sad when it was time for the market to close! Be sure to check it out when you get a chance!
Wednesday, June 6, 2007
Maddie has been busy this week. On Monday she was able to play with two of her friends, Annaliese and Justus and she came home with a new pair of old crocs! Yesterday and today she was able to stay with her cousins and play, play, play! She loves her cousins Devon, Megan and EmiLee! Tomorrow she'll get to stay at home with Kayleigh while we're at the hospital with Bubba! She's also been able to see Fletcher a lot since school is out. I think he really enjoys getting to hang out with Maddie. She loves to play with him and she loves to be in his bed with him!